National Charities


Action for Pulmonary Fibrosis (APF) are the leading charity specifically dedicated to improving the quality of life for patients living with pulmonary fibrosis and . APF focus on support, education, research funding and campaigning.  www.actionpulmonaryfibrosis.org 

The APF Support Line provides information or advice on living with pulmonary fibrosis. Call 01223 785725 and leave a message giving your name and phone number. Their team of specialist ILD nurses and patient ambassadors will call you back as soon as possible. 

The Pulmonary Fibrosis Trust provide practical, emotional and financial support where there is a need to those living with pulmonary fibrosis. They raise awareness of the illness and in particular the challenges people face on a daily basis. They can offer short breaks for PF sufferers and their families in the UK. https://pulmonaryfibrosistrust.org 


BLF is the largest UK lung charity. Its aim is the prevention, treatment and cure of lung diseases. It campaigns for clean air, sponsors research into lung conditions and provides information and support for sufferers. Helpline is available Weekdays 9am -5pm. (out-of-hours, messages can be left) Tel: 03000 030555      www.blf.org.uk