Meet at the Willow Centre, Cringleford, from 2-4pm. Tea/Coffee and chat available from 1:30pm (see CONTACT from main menu). Bring a friend or relative if you wish. There is no charge but a raffle is held to help cover our costs (donated prizes welcome). N.B. All future meetings will obviously be subject to the Covid-19 guidance at the time.
Cancelled due to COVID-19 Spring meeting Saturday 28th March NNUH Pulmonary Rehabilitation team
Keeping Active – Pulmonary Rehabilitation and more! Keeping active is important for all of us, including when you are living with a long-term lung condition. Find out why muscle fitness matters, how PR helps and how to get on a PR programme.
Cancelled due to COVID-19 Summer meeting Saturday 27th June Louise Bailey, Senior Lung Physiologist, Respiratory Medicine, NNUH Breathing tests – why we do them and what they tell us. Many people feel anxious about a visit to the lung function lab to do the breathing tests. Louise will explain what we are measuring and why the tests are important
Group ZOOM Meetings (see latest Newsletter) have been arranged for 8th August, 26th Sept, 7th Nov and 19th December. Sandra will be issuing invites and reminders shortly beforehand. All are Saturdays at 3:30 to 4:30 pm
Physical Meeting Cancelled Now by ZOOM 3:30 to 4:30 pm. Autumn meeting Saturday 26th Sept World Pulmonary Fibrosis month – raising funds and awareness Let’s get the Norwich group on the ‘world fibrosis’ map! Debra Chand, APF Services lead, will be joining us. Details of activity nearer the time.
Chair & Editor
Consultant Respiratory Nurse, Norfolk & Norwich University Hospital, with special interests in ILDs, Oxygen Therapy and Pulmonary Rehab.
Professor of Respiratory Medicine at UEA, Consultant Respiratory Physician, Norfolk & Norwich University Hospital, special interests in ILD and Asthma. Respiratory Research Lead at UEA.
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This has been an ever-changing situation, but for people with chronic health issues the key points remain - good hygiene (hand washing) and physical distancing.
For detailed and updated information the following sources are relevant. (control+click to link)
NHS Advice and Information https://www.nhs.uk/conditions/coronavirus-covid-19/
Government Advice and Orders https://www.gov.uk/coronavirus
APF Advice www.actionpulmonaryfibrosis.org/coronavirus/
BLF Support and Advice https://www.blf.org.uk/support-for-you/coronavirus
Public Health Information https://www.gov.uk/government/organisations/public-health-england
Helplines for patients and carers are: APF 01223 785725; BLF 03000 030 555.
It is important to maintain fitness, even if mostly confined to ones home. There is now a section under "Pulmonary Rehab" giving advice on exercising at home.
Our Newsletters are normally published shortly after each meeting, with a comprehensive report of the main Presentation. This can be very informative and serve as a valuable resource both for those at the meeting and those who were unable to attend. The newsletters are e-mailed to everyone, but if you need a physical copy to be posted please let Sandra know. Because of the COVID-19 situation and the absence of actual meetings, there are more frequent, but smaller, updating issues.
Virtual ZOOM meetings, Future outpatients appointments, and other updates.
Extra Issue - Coping with Confinement
Coronavirus - Keeping safe and keeping fit. A shorter, updating Newsletter.
PF - What does it mean? Sandra Olive celebrates the 6 years of the Support Group, followed by explanations of what "interstitial" means, the types of disease and their symptoms, diagnosis and treatment. January 2020
Research Update Professor Andrew Wilson, Consultant Respiratory Physician at NNUH also leads Respiratory Research in the School of Medicine at UEA. Here he explains the methodology and results of some of his research projects. October 2019
Coping with Breathlessness- a Practical Guide. A talk by Emma Dix and Sarah Heritage, Occupational Therapists at NNUH April. Suggestions and approaches to reduce breathlessness by more efficient expenditure of our energy. April 2019
Coping with Coughs. A Presentation by Laura Grimsey, Senior Physiotherapist at NNUH. Explanations of the different types of cough and how to deal with them. October 2018
It is a multi-component intervention for those living with long-term lung conditions aiming to improves physical fitness, the quality of life and give the confidence to self-manage. Each course consists of an initial assessment, six consecutive two hour sessions in a small group and a final discharge assessment. You will be given an individualised exercise programme and lung health education. The topics covered include:
* how do your lungs work?
* getting the best from your respiratory medications
* relaxation techniques, breathing control and chest secretion clearance
* anxiety, stress and depression management
* energy conservation
* what to do when breathing gets worse - self management planning
* further support available if things get worse
* eating well for good lung health
* oxygen therapy - will you need it?
* smoking cessation
* the importance of exercise and maintaining fitness after the programme
Part one of the session is devoted to increasing your stamina and fitness with individually prescribed exercises. Not everyone has the same level of fitness so you will be carefully assessed at the start of the course to make sure that the exercises you do are suitable and safe for you.
• Part two has refreshments then a talk from an expert speaker. We want to increase your knowledge of lung disease and your confidence to cope with breathlessness, especially when it is worse than usual or you have a chest infection. You will have plenty of opportunity to ask questions.
The NNUH Pulmonary Rehabilitation programme takes referrals from the respiratory clinics and from in-patient clinical teams.
It is led by Paula Browne, Senior Respiratory Nurse Specialist. Tel: 01603 289779 email@example.com .
They are held at The Willow Centre, Cringleford NR4 7JJ (see under "CONTACT") on Tuesday mornings.
Also at the Willow Centre and led by Paula are Singing for Breathing sessions on 2nd and last Fridays of the month, 1pm for 1:30 start.
Note: All above sessions are in abeyance due to the Covid-19 situation. Participants will be advised when they restart.
In these areas, Jackie Peyton is Clinical Lead for Pulmonary Rehabilitation Email: firstname.lastname@example.org Tel: 01263 710 585
ALL SESSIONS SUSPENDED DUE TO CORONAVIRUS
|Chet Valley Med Practice, Loddon; Wednesday 10 am - 12 noon|
Diss Community Church (DC3); Monday 9.30 am - 11.30
Ketts Park Community Centre; Monday 1.30 am – 3.30 pm
Norwich Community Hospital; Thursday 10 am – 12 noon
Sheringham Splash Fitness & Leisure; Thursday 1.30 am – 3.30 pm
|Dereham Hospital; Wednesday 10 am - 12 noon|
Fakenham; not at present
North Walsham, Victory Swim & Fitness; Tuesday 2 pm - 4 pm
Norwich Riverside Leisure; Friday 1.30 am – 3.30 pm
Thetford, Healthy Living Centre; Friday 9:30am - 11:30 noon
N.B. Courses can also be run at Lakenham Community Hall on a Monday, if Norwich waiting list gets too long.
In West Norfolk Pulmonary Rehab is undertaken by a team from British Oxygen Clinical Services http://www.bocclinicalservices.co.uk/en/index.html
Clinical lead is Siobhan Hollier, Tel: 0800 012 1858 email: Siobhan.email@example.com
ALL SESSIONS SUSPENDED DUE TO CORONAVIRUS
Sessions are held at:
Downham Market Methodist Church, Paradise Rd, Downham Market PE38 9JE - Tuesday afternoons
With the need to Socially distance or isolate ourselves because of Coronavirus, it is particularly important to maintain or improve our general fitness and well-being.
This is a series of videos from the British Lung Federation. It has exercises at 3 levels, covering; Warming Up, Strength Exercises, Aerobic Exercises and Cooling down. www.blf.org.uk/exercise-video
The NHS has guidance for older adults on improving fitness and well-being. (Control & Click to connect).
There are then 4 sets of exercises with clear down-loadable instructions and illustrations.
Action for Pulmonary Fibrosis (APF) are the leading charity specifically dedicated to improving the quality of life for patients living with pulmonary fibrosis and . APF focus on support, education, research funding and campaigning. www.actionpulmonaryfibrosis.org
The APF Support Line provides information or advice on living with pulmonary fibrosis. Call 01223 785725 and leave a message giving your name and phone number. Their team of specialist ILD nurses and patient ambassadors will call you back as soon as possible.
|The Pulmonary Fibrosis Trust provide practical, emotional and financial support where there is a need to those living with pulmonary fibrosis. They raise awareness of the illness and in particular the challenges people face on a daily basis. They can offer short breaks for PF sufferers and their families in the UK. https://pulmonaryfibrosistrust.org |
BLF is the largest UK lung charity. Its aim is the prevention, treatment and cure of lung diseases. It campaigns for clean air, sponsors research into lung conditions and provides information and support for sufferers. Helpline is available Weekdays 9am -5pm. (out-of-hours, messages can be left) Tel: 03000 030555 www.blf.org.uk
1st Tuesday in Month. 2-4 pm St Faiths Centre, Horsham St Faiths, NR10 3LF 0300 3030253
Meetings cancelled due to Coronavirus
Last Monday in month. 1:30 - 3:30 pm Church Rooms, Gaywood Rd, Kings Lynn PE30 4DZ
1st Friday. 1:30 - 3:30 pm Sheringham Community Centre, Holway Rd, Sheringham NR26 8NP 0300 3030253
3rd Wednesday. 1:30 - 3:30 pm Cloverfield Community Centre, Rosecroft Way, Thetford IP24 2TZ
If you are interested in attending a new group here, please contact firstname.lastname@example.org